News / Health

US Doctors Create New Registry for Childhood Heart Problems

The IMPACT registry stands for 'Improving Pediatric and Adult Congenital Treatment' and includes information about patients who do not undergo open heart surgery. Often they undergo catheterization, a procedure which uses a catheter, or narrow tube, that is threaded into the heart through a blood vessel.

US Doctors Create New Registry for Childhood Heart Problems
US Doctors Create New Registry for Childhood Heart Problems

Multimedia

Daniel Ryntjes

A five-month-old baby born with a congenital heart defect undergoes a catheterization. The child is one of 36,000 babies born with a heart defect in the U.S. each year. Doctors are working on the infant's heart without performing open heart surgery. Cardiologists, such as Dr. Gerard Martin, say that within the last four years, doctors have learned how to perform more complex heart surgeries using catheters.

"...you can fix the heart without cuts, without invading the body, without pain," says Dr. Gerard Martin at Chlidnen's National Medical Center

But Dr. Martin says the long-term effectiveness of certain heart catheterization procedures is unclear.

So working with the American College of Cardiology, Dr. Martin is establishing a new database, known as the IMPACT registry. It records the progress of thousands of catheterization patients over the long-term.

Dr. Martin says, by monitoring the progress of multiple patients from infancy through adulthood, doctors can gather crucial evidence about the effectiveness of the procedures.

"...so we will know how we are really doing when we treat this condition," he adds.  "Not in 20 children in one hospital, but in 2,000 children in a hundred hospitals."

Doctors use such databases to monitor the long-term well-being of patients undergoing many kinds of treatments.

EJ Davis, 4, was only three-months-old when he underwent open heart surgery.

His physician, Dr. Richard Jonas, still gets regular progress reports on EJ and thousands of other patients from a surgical registry.

"It's not just about surviving an operation and doing well for a few days or a few weeks. It's about decades and decades," says Dr. Jonas.

EJ's mother, Hope Davis, says she believes registries will help to improve the lives of children born with heart defects in the future.

"They'll have access to even better care and even more knowledge in science that will really help," she says.  "One day maybe they'll only have to go through a few things that EJ had to go through."

Dr. Gerard Martin says the IMPACT registry for catheterization patients will help doctors to make decisions based on long-term evidence gathered from many hospitals. He says it will help future generations of patients live healthier lives.

You May Like

Photogallery Americans Celebrate Thanksgiving With Feasts, Festivities

Holiday traditions include turkey dinners, 'turkey trots,' American-style football and New York parade with giant balloons More

Video For Obama, Ferguson Violence is a Personal Issue

With two years left in term, analysts say, president has less to lose by taking conversation on race further More

Video Italian Espresso Expands Into Space

When Italian astronaut Samantha Cristoforetti headed for the ISS, her countrymen worried how she would survive six months drinking only instant coffee More

This forum has been closed.
Comments
     
There are no comments in this forum. Be first and add one

Featured Videos

Your JavaScript is turned off or you have an old version of Adobe's Flash Player. Get the latest Flash player.
South Africa Sees Male Circumcision as Way to Reduce HIV Infectionsi
X
November 28, 2014 3:31 PM
South Africa remains plagued by AIDS despite massive government and NGO efforts on prevention and life-sustaining Anti-Retro-Viral programs. But the country has opened up another front to reduce new HIV infections: promoting circumcision. Emilie Iob reports for VOA News from a pioneering circumcision center in Orange Farm, Johannesburg.
Video

Video South Africa Sees Male Circumcision as Way to Reduce HIV Infections

South Africa remains plagued by AIDS despite massive government and NGO efforts on prevention and life-sustaining Anti-Retro-Viral programs. But the country has opened up another front to reduce new HIV infections: promoting circumcision. Emilie Iob reports for VOA News from a pioneering circumcision center in Orange Farm, Johannesburg.
Video

Video To Make A Living, Nairobi Street Vendors Face Legal Hurdles, Physical Violence

The Nairobi City Council has been accused of brutality in dealing with hawkers in the Central Business District - in order to stop them from illegally selling their wares on the streets. Lenny Ruvaga has more for VOA News from the Kenyan capital.
Video

Video For Obama, Ferguson Violence is a Personal Issue

Throughout the crisis in Ferguson, Missouri, President Barack Obama has urged calm, restraint and respect for the rule of law. But the events in Ferguson have prompted him to call — more openly than he has before — for profound changes to end the racism and distrust that he believes still exists between whites and blacks in the United States. VOA White House correspondent Luis Ramirez reports.
Video

Video Online Magazine Gets Kids Discussing Big Questions

Teen culture in America is often criticized for being superficial. But an online magazine has been encouraging some teenagers to explore deeper issues, and rewarding their efforts. VOA religion reporter Jerome Socolovsky went to this year’s Kidspirit awards ceremony in New York.
Video

Video US Community Kicks Off Thanksgiving With Parade

Thursday is Thanksgiving in the United States, a holiday whose roots go back to the country's earliest days as a British colony. One way Americans celebrate the occasion is with parades. Anush Avetisyan takes us to one such event on the day before Thanksgiving near Washington, where a community's diversity is on display. Joy Wagner narrates
Video

Video Aung San Suu Kyi: Myanmar Opposition to Keep Pushing for Constitutional Change

Myanmar opposition leader Aung San Suu Kyi says she and her supporters will continue pushing to amend a constitutional clause that bars her from running for president next year. VOA's Than Lwin Htun reports from the capital Naypyitaw in this report narrated by Colin Lovett.
Video

Video Mali Attempts to Shut Down Ebola Transmission Chain

Senegal and Nigeria were able to stop small Ebola outbreaks by closely monitoring those who had contact with the sick person and quickly isolating anyone with symptoms. Mali is now scrambling to do the same. VOA’s Anne Look reports from Mali on what the country is doing to shut down the chain of transmission.
Video

Video Ukraine Marks Anniversary of Deadly 1930s Famine

During a commemoration for millions who died of starvation in Ukraine in the early 1930s, President Petro Poroshenko lashed out at Soviet-era totalitarianism for causing the deaths and accused today’s Russian-backed rebels in the east of using similar tactics. VOA’s Daniel Shearf reports from Kyiv.
Video

Video Hong Kong Protests at a Crossroads

New public opinion polls in Hong Kong indicate declining support for pro-democracy demonstrations after weeks of street protests. VOA’s Bill Ide in Guangzhou and Pros Laput in Hong Kong spoke with protesters and observers about whether demonstrators have been too aggressive in pushing for change.
Video

Video US Immigration Relief Imminent for Mixed-Status Families

Tens of thousands of undocumented immigrants in the Washington, D.C., area may benefit from a controversial presidential order announced this week. It's not a path to citizenship, as some activists hoped. But it will allow more immigrants who arrived as children or who have citizen children, to avoid deportation and work legally. VOA's Victoria Macchi talks with one young man who benefited from an earlier presidential order, and whose parents may now benefit after years of living in fear.
Video

Video New Skateboard Defies Gravity

A futuristic dream only a couple of decades ago, the hoverboard – a skateboard that floats above the ground - has finally been made possible. While still not ready for mass production, it promises to become a cool mode of transport... at least over some surfaces. VOA’s George Putic reports.
Video

Video Falling Gas Prices Impact US Oil Extraction

With the price of oil now less than $80 a barrel, motorists throughout the United States are benefiting from gas prices below $3 a gallon. But as VOA’s Kane Farabaugh reports, the decreasing price of petroleum has a downside for the hydraulic fracturing industry in the United States.

All About America

AppleAndroid