News / Africa

    Ugandan Woman Works to End HIV Stigma

    HIV youth activist Barbara Kemigisa at her home in Kampala, Uganda, June 13, 2012. (Hillary Heuler /VOA)
    HIV youth activist Barbara Kemigisa at her home in Kampala, Uganda, June 13, 2012. (Hillary Heuler /VOA)
    KAMPALA, Uganda – While the world's leading experts on HIV/AIDS are preparing for the upcoming AIDS 2012 Conference in Washington, D.C., one young Ugandan activist is focusing on problems much closer to home.

    “I am Barbara Kemigisa, I am an activist and an upcoming artist, a single mother living with HIV,” Kemigisa tells the audience. She is fighting to rid her generation of the stigma attached to HIV, and to convince young HIV positives that their lives are not over yet.

    On a sultry Kampala afternoon, the 26-year-old singer is rehearsing a new song in a make-shift sound studio in the Ugandan capital. This is not a love ballad or the next hot dance tune. Like everything Kemigisa does, her music is about self-confidence, hope and the possibilities of living with HIV.

    Vibrant and charismatic, Kemigisa has become a spokeswoman for thousands of young people in Uganda, a country with an HIV infection rate of around seven percent.  The founder an organization called Stigma Free Generation, she puts in regular appearances on TV and radio shows, tells her story in magazine articles, and speaks in churches and schools.

    Uphill battle

    Kemigisa’s message to young people is this: do not let your HIV status destroy your life, conquer the stigma within you, and do not be afraid to say you are HIV positive.

    But, Kemigisa says, it is an uphill battle.

    “Because of stigma, people do not believe in themselves.  Because of stigma, people can not test for HIV.  People still say, ‘I would rather not know my status than test HIV positive.’  Mothers cannot save their unborn babies because they cannot tell their husbands that, I am HIV positive, I need your support,’” she says.

    Kemigisa’s own story is difficult. Sexually molested as a child, she spent part of her teenage years living on the streets of Kampala. She eventually joined a church and discovered that she had a gift for counseling youth.

    Kemigisa learned she was HIV positive when she was pregnant with her daughter, now three years old. But, she says, learning her status only galvanized her to try to help young people like herself.

    “I kept what my passion was, to speak to young people," she explains. "I just looked at the whole issue of HIV, what it is all about, and I was like, 'OK, I think I know what I have to do.”

    What she did was to come out very publicly about her status, wearing “HIV positive” earrings and T-shirts she made herself, and talking to everyone she met about the disease.

    Stigma

    She found that what hurt people the most was not HIV itself, but the stigma attached to it.

    “It takes 40 years plus for HIV to kill, and it takes two years and less for AIDS to kill.  But it takes 10 minutes and less for stigma to kill," Kemigisa notes. "Someone just tells you something small to put you down, and that person commits suicide.”

    It is often young people who are the most devastated, she says.

    “They believe if they get HIV, their life is cut short," adds Kemigisa. "They just look at the things they may not be able to do because they are HIV-positive.”

    Sometimes HIV-positive people are treated as though they were already dead, says Kemigisa, describing what happened to a friend of hers.

    “When the whole family found out, her dad even bought a coffin for her. ‘That is your coffin, we are just waiting for the day you die.’  You can pass somewhere and some guy calls at you, and [his] friends are like, ‘That one is already dead,” Kemigisa laments.

    Kemigisa’s father disowned her when he learned her HIV status, and she practically never sees her family. But she manages to stay upbeat, and is still full of ideas for new projects. 

    Future plans

    At the moment, Kemigisa is working on a reality TV show featuring young people living with HIV. She is also organizing a Miss HIV beauty pageant, to challenge stereotypes and boost girls’ confidence.

    And then, of course, there is her music.

    “’I dream of a city where people line up for a test, with ARVs [anti-retroviral drugs] at every drug shop, at every clinic; mothers taking the lead to save their unborn babies, and husbands supportive, with every neighbor in the fight towards an HIV-free generation," she says. "That is one of the verses for a song. I want to be the first lady to come out positive and sing about it.”

    Despite her activism, Kemigisa will not be attending this month’s AIDS 2012 Conference in Washington, D.C. The reasons for that are political, she explains. But that has not stopped her from thinking big, as she dreams someday of spreading her message of hope throughout Africa, and, eventually, the world.

    You May Like

    Turkey, US Splits Deepen Over Support for Kurdish Militants

    Ankara summons American ambassador to protest remarks by State Department spokesman who said Washington does not consider Syria's Kurdish Democracy Union Party (PYD) a terrorist organization

    Obama Seeking $19 Billion for National Cybersecurity

    Move, touted as attempt to build broad, cohesive federal response to cyberthreats, calls for increase in cybersecurity spending across all government agencies

    Video Foreign Policy Weighs Heavy for Some US Voters

    VOA talks to protesters in Manchester, New Hampshire, who sound off on foreign policy issues such as the Guantanamo Bay prison, the Israeli-Palestinian conflict and the wars in Iraq, Syria and Yemen

    This forum has been closed.
    Comments
         
    There are no comments in this forum. Be first and add one

    By the Numbers

    Featured Videos

    Your JavaScript is turned off or you have an old version of Adobe's Flash Player. Get the latest Flash player.
    Valentine's Day Stinks for Lebanese Clownsi
    X
    February 09, 2016 8:04 PM
    This weekend, on Valentine's Day in Lebanon, love is not the only thing in the air. More than half a year after the country's trash crisis began, the stink of uncollected garbage remains on the streets. Step forward "Clown Me In," a group of clowns who use their skills for activism. Before the most romantic day of the year the clowns have released their unusual take on love in Lebanon -- in a bid to keep the pressure up and get the trash off the streets. John Owens reports from Beirut.
    Video

    Video Valentine's Day Stinks for Lebanese Clowns

    This weekend, on Valentine's Day in Lebanon, love is not the only thing in the air. More than half a year after the country's trash crisis began, the stink of uncollected garbage remains on the streets. Step forward "Clown Me In," a group of clowns who use their skills for activism. Before the most romantic day of the year the clowns have released their unusual take on love in Lebanon -- in a bid to keep the pressure up and get the trash off the streets. John Owens reports from Beirut.
    Video

    Video Rocky Year Ahead for Nigeria Amid Oil Price Crash

    The global fall in the price of oil has rattled the economies of many petroleum exporters, and Africa’s oil king Nigeria is no exception. As Chris Stein reports from Lagos, analysts are predicting a rough year ahead for the continent’s top producer of crude.
    Video

    Video Foreign Policy Weighs Heavy for Some US Voters

    VOA talks to protesters in Manchester, New Hampshire who sound off on foreign policy issues such as the Guantanamo Bay Prison, the Israeli-Palestinian conflict, Middle East Affairs and national security.
    Video

    Video 'No Means No' Program Targets Sexual Violence in Kenya

    The organizers of an initiative to reduce and stop rape in the informal settlements around Kenya's capital say their program is having marked success. Girls are taking self-defense classes while the boys are learning how to protect the girls and respect them. Lenny Ruvaga reports from Nairobi.
    Video

    Video New Hampshire Voters Are Independent, Mindful of History

    Once every four years, the northeastern state of New Hampshire becomes the center of the U.S. political universe with its first-in-the-nation presidential primary. What's unusual about New Hampshire is how seriously the voters take their role and the responsibility of being among the first to weigh in on the candidates.
    Video

    Video Chocolate Lovers Get a Sweet History Lesson

    Observed in many countries around the world, Valentine’s Day is sometimes celebrated with chocolate festivals. But at a festival near Washington, the visitors experience a bit more than a sugar rush. They go on a sweet journey through history. VOA’s June Soh takes us to the festival.
    Video

    Video 'Smart' Bandages Could Heal Wounds More Quickly

    Simple bandages are usually seen as the first line of attack in healing small to moderate wounds and burns. But scientists say new synthetic materials with embedded microsensors could turn bandages into a much more valuable tool for emergency physicians. VOA’s George Putic reports.
    Video

    Video Bhutanese Refugees in New Hampshire Closely Watching Primary Election

    They fled their country and lived in refugee camps in neighboring Nepal for decades before being resettled in the northeastern U.S. state of New Hampshire -- now the focus of the U.S. presidential contest. VOA correspondent Aru Pande spoke with members of the Bhutanese community, including new American citizens, about the campaign and the strong anti-immigrant rhetoric of some of the candidates.
    Video

    Video Researchers Use 3-D Printer to Produce Transplantable Body Parts

    Human organ transplants have become fairly common around the world in the past few decades. Researchers at various universities are coordinating their efforts to find solutions -- including teams at the University of Pennsylvania and Rice University in Houston that are experimenting with a 3-D printer -- to make blood vessels and other structures for implant. As VOA’s Greg Flakus reports from Houston, they are also using these artificial body parts to seek ways of defeating cancerous tumors.
    Video

    Video Helping the Blind 'See' Great Art

    There are 285 million blind and visually impaired people in the world who are unable to enjoy visual art at a museum. One New York photographer is trying to fix this situation by making tangible copies of the world’s masterpieces. VOA correspondent Victoria Kupchinetsky was there as visually impaired people got a feel for great art. Joy Wagner narrates her report.
    Video

    Video German Artists to Memorialize Refugees With Life Jacket Exhibit

    Sold in every kind of shop in some Turkish port towns, life jackets have become a symbol of the refugee crisis that brought a million people to Europe in 2015.  On the shores of Lesbos, Greece, German artists collect discarded life jackets as they prepare an art installation they plan to display in Germany.  For VOA, Hamada Elrasam has this report from Lesbos, Greece.
    Video

    Video E-readers Help Ease Africa's Book Shortage

    Millions of people in Africa can't read, and there's a chronic shortage of books. A non-profit organization called Worldreader is trying to help change all that one e-reader at a time. VOA’s Deborah Block tells us about a girls' school in Nairobi, Kenya where Worldreader is making a difference.
    Video

    Video Genius Lets World Share Its Knowledge

    Inspired by crowdsourcing companies like Wikipedia, Genius allows anyone to edit anything on the web, using its web annotation tool
    Video

    Video In Philippines, Mixed Feelings About Greater US Military Presence

    In the Philippines, some who will be directly affected by a recent Supreme Court decision clearing the way for more United States troop visits are having mixed reactions.  The increased rotations come at a time when the Philippines is trying to build up its military in the face of growing maritime assertiveness from China.  From Bahile, Palawan on the coast of the South China Sea, Simone Orendain has this story.